Hi friends! Courtney here! I’m dedicating this little space of the internet to Wyatt, my Noonan Syndrome warrior! He has a rare genetic disorder that affects very few but is also variably expressed! No two “noonies” are the same. His heart, some facial features and gross motor skills are affected . So far in his short little life he’s been through so much! I’ve learned so much about this disorder and feel I can maybe help other Noonan families. I’m doing this to raise awareness and advocate for my little man! He’s a true trooper!

Wyatt was diagnosed at birth and was a complete shock to Steve and I. We’re learning as we go and I think we could also benefit from connecting with other families of Noonan babies.

I’m linking a very informative website that goes all into the disease. Please give it a read :)