Hi friends! Courtney here! I’m dedicating this little space of the internet to Wyatt, my Noonan Syndrome warrior! He has a rare genetic disorder that affects very few but is also variably expressed! No two “noonies” are the same. His heart, some facial features and gross motor skills are affected . So far in his short little life he’s been through so much! I’ve learned so much about this disorder and feel I can maybe help other Noonan families. I’m doing this to raise awareness and advocate for my little man! He’s a true trooper!
Wyatt was diagnosed at birth and was a complete shock to Steve and I. We’re learning as we go and I think we could also benefit from connecting with other families of Noonan babies.
I’m linking a very informative website that goes all into the disease. Please give it a read :)
Resources in South Florida
Doctors & Organizations we love
Dr. Drossner - pediatric cardiologist - very familiar with multiple syndromes including Noonans
Wyatt had a heart catheterization at 5 months old and he referred us to:
Dr. Prieto - pediatric cardiac interventionist with Miami Children’s Hosptial
Dr. Wicina - local pediatrician - Wyatt is her third patient with Noonan’s
Dr. Miladys - pediatric endocrinologist
Questions about Noonan’s?
Message me on Instagram @c.fergy
My Top Picks
Things all babies and mama’s love!
Let me know if you purchase anything and how you like it!
Anna’s Big Week
Children’s book about Noonan’s Syndrome
Advocate Like a Mother
A shirt for all Moms advocating for their Warriors
Toy great for exercise!
This peanut ball has been great for Wyatt. He has low tone and this ball has really given him the ability to practice sitting and other activities at home!