I have been sick, experiencing major flares, and am going to go through a diagnoses for connective tissue disorder. in addition, January will be bringing a second surgery as well as intense cognitive testing and therapy to deal with the lingering after effects of my stroke, which will put me out of beadwork and jewelry crafting for at least 2 weeks minimum. I desperately need help covering bills and rent for January. winter is not a good time for a disabled person to go through an eviction in NYC.
What happened to me happened because of medical negligence of one person, a nurse, who did not do her job and did not read my chart. It has affected my body system wide including every major organ, my immune system, my blood, my muscles, and especially my brain. I am paying for someone else's mistake and the wheels of justice move slowly for these things. Disability moves slowly then keeps you living in poverty.
Prior to this I was a death doula, a community caregiver, a protest participant, a mental health first aider, and a first responder. I was a teacher, a panel expert, and resource for those who experienced barriers. I no longer have that capacity. I have short term and long term memory deficits, I fall when I walk without a cane, I have vertigo, I cannot hold a verbal conversation for more than 20-30 minutes without struggling. I am still very much in extensive rehab and recovery.
I appreciate everyone who has helped so far this year. I count my blessings daily and you are among those blessings.
THANK YOU
Goal by January 1st is $2900 to cover rent, bills, and meds not covered by insurance.
URGENT IMMEDIATE NEEDS ARE FOOD FOR SAMMY AND $200 TO COVER INTERNET AND PHONE. PLEASE ALSO CHECK OUT MY AMAZON LIST FOR HOUSEHOLD NEEDS I CANNOT AFFORD AFTER PAYING BILLS.
I was supposed to be on rest and recovery and instead I am now running a small business. And although beadwork and becoming a jeweler has brought me great joy, it can be very very hard when you have chronic illness and are still recovering from stroke and heart failure. My donations have been minimal the last several months because I try not to ask as much as I can and make up for it in sales. I would really like to be able to actually rest.
I WILL BE HOSTING A RAFFLE OR TWO IN THE NEXT COUPLE WEEKS SO PLEASE BE ON THE LOOKOUT FOR THOSE POSTS ON MY INSTAGRAM.
THE BEST WAY TO KEEP UP WITH MY UPDATES IS TO EITHER SET AN ALERT, JOIN MY NEWSLETTER, OR JOIN MY KO-FI
12/22/22
Thanks to donations and sales my bills will be covered for January. I still need help to keep me housed to the tune of $2300.
I received some heartbreaking news today that I will not be able to get neuro testing to qualify for more intense cognitive therapy to treat my plethora of verbal and cognitive deficits until June of 2023 after being told I could get an appt in January.
The testing is substantial and rigorous but in order to get into any program it has to be done.
What does this mean? The longer I go without treatment, these deficits set in as permanent.
Getting in anywhere else will also be a battle cause there are only two places in NYC. Neuropsychs are like unicorns and with long Covid on the rise and resembling TBI, they are overwhelmed with patients.