Advocate Like a Mother
I’m a parent advocate of our youngest son, Joshua with Bardet Biedl Syndrome.
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To learn more about Rare Genetic Disorders of Obesity, please take a look at articles, podcasts and resources we’ve been involved in over the years.
- Resource : BBS Association
- Resource : LEAD for Rare Obesity
- Article : Love What Matter - Undiagnosed
- Article : Love What Matters - Diagnosis Journey
- Article : Global Genes - In Rare Form by Daniel Levine
- Article : Authority Magazine - Unstoppable
- Article : Rare Revolution
- Article : Patient Worthy
- Podcast : Once Upon a Gene