as it is national purple day to spread awareness about epilepsy and after me popping a poll on my story about making a blog, a number of you wanted me to do an epilepsy page all about epilepsy. i’ll share my story and add some more information on branston’s epilepsy too!
when i was first diagnosed with epilepsy i was roughly 11 years old, i had my first seizure at the age of 4 though. it’s like a death hole, all your senses go, your memory blanked. little to no warning is given either and you can be down within seconds, one second standing, the next on the floor shaking vigorously for who knows how long for (pretty scary if i say so myself).
on my journey to getting diagnosed i was actually misdiagnosed at the very beginning with something not even google knew, nor did my gp. i ended up having to travel back and forth to an epileptic specialist, underwent 4 hours of testing and was finally diagnosed with epilepsy causing my grand mal seizures and absent seizures! many people can stereotype epilepsy into thinking it is triggered by flashing lights and it’s constantly people shaking on the floor whereas really it isn’t and there are multiple triggers and multiple types💜 epilepsy is going to restrict my every move and every life decision i now make, it will limit my ability’s and could take my life at any minute so i have to live each day to the full, my seizures are semi-controlled for the moment so don’t worry, this isn’t the last of me - i am a fighter💪
24.04.2021 : i experienced one of my worst seizures, i woke up with a really bad locked jaw (a signal that i’ve had a seizure). luckily i was ok but it was pretty scary to know that it happened when i was asleep and anything could have happened!
let’s talk about canine epilepsy now, again this is very overlooked and more common than you would think. branston was diagnosed with epilepsy after 3 seizures, his first ever seizure happened in the very early morning around 2am, we awoke to the sound we thought was a bird where really it was branston on the floor having a seizure, jolting and ‘spazzing’ vigorously much like a human grand mal seizure! the second time his eyes went like a ghost and he lost a lot of colour very quickly and then after his 3rd one the vet decided to put him on medication. the medication stabilised him very quickly and he was able to be back to his normal self again - a year and a half later his epilepsy took his life after one of the most ‘rare’ side effects ruined his liver and it took him out like lightning, he went down hill within a week and sadly crossed the rainbow bridge🥺
if you have any questions please feel free to dm me and i am always happy to educate and talk about anything x