Quinnlee Mae
My Story
Our baby girl Quinnlee Mae was recently diagnosed with a rare genetic disorder called SMARD which is (Spinal Muscular Atrophy with Respiratory Distress) Only affecting less then 100 kids there is no cure insight for this tragic disorder, but through it all our baby girl shares her love and affection through her bright smile and witty facial expressions. She shows us everyday that it’s okay to not be okay. At her young age she has shown us that she is a fighter and is stronger then any of us could imagine and she is not defined by a statistic and will tell her own story.
We hope to prevent other families to have to go through what us as parents have had to go through these recent months and hope that you follow Quinnlee in her journey of a fulfilling life.
Quinnlee has a Go Fund Me made for funding for doctor appointments, medical equipment and expenses, and anything else that this disorder will throw at her for years to come. You can also help us by donating towards the SmashSMARD Foundation to provide the research and funding it needs to help those affected and maybe help find a cure.