CF Warrior, Lung Transplant Survivor, Author, and Mom
About
Hey there, folx, I'm Sebastian, and I'm so glad you decided to check out my site!
A little about me. So I was diagnosed with Cystic Fibrosis when I was thirteen years old. I had been sick my whole life, the doctors confounded by what was wrong with me, so it took 13 years and a lot of suffering to get it sorted.
Once we did I fully gave up on life, just making it through the motions as I longed for death to release me from my plight. Thankfully therapy as a young adult turned me around and now, my mind is doing great!
And finally, finally, my body is starting to file suit. I had a life-saving double-lung transplant on November 11 2020, after being listed for three months. Now, I can finally get back to working (which I havent done in almost three years) and go back to school to get my psychology degree.
Ultimately, I want to help other patients with CF pre-, cuttebt-, and post- lung transplant know that they are not alone. I want them to see that another can suffer through everything I have and make it out on the other side with a smile on their face and joy in their heart. It May be a difficult battle, but the fight is worth the win!